Posted by on March 6, 2023

Everyones symptoms are different but I felt compelled to share mine. Always best to heed the advice of your doctor(s) who will be in the best position to offer advice about safe forms of exercise. (Have you heard of the studies by Dr. Questions currently remain about how long such repairs will last and whether patients might require re-operation at some point in the future. Thanks very much for this Dr, it is really helpful to get someone elses opinion on the subject and Ill definitely raise those points with my cardiologist next time we meet. (Yes, I have been going for regular check-up since in was about 7 years old. And of course the problem occurs in everyday, recreational athletes, too. Im not sure theres enough information at hand to offer sound advice. My resting pulse is 55 and BP 115/82. I like to thank you in advance for reviewing my question and also, thank you for such a great blog. The potential downside relates to durability. A HR limit of 120 will be tough, I would guess. Your suggestion about a 2nd opinion is a good one. If you wont we can share experiences about healing and progress, its pretty much same situation. I am 51 and leaning towards a tissue valve because of my activities and that I am a firefighter. My cardiologist is not concerned. Dr. Larry, very helpful content. This site complies with the HONcode standard for trustworthy health information. My 25 year old son was just diagnosed with BAV AR (3+). First, a disclaimer.My practice is devoted to adult patients. I know they really should get checked, and they will. Bicuspid aortic valve (BAV) is the most frequent congenital cardiac defect, and affects 0.5-2% of live births. The data regarding the progression of disease in athlete patients with BAVare limited. A lot of people have it, she told Access Hollywood in 2009. Questions about Bicuspid Aortic Valve!! : r/AskDocs What he did say is there are no signs of stenosis, and my heart looks very strong. Barb. California Governor and movie star of films including The Terminator and The Predator, Arnold Schwarzenegger marked the 10-year anniversary of his heart surgery at USCs Health Science Campus. Weve known the risks and my daughter has done well to avoid scrapping for the ball etc. Every 6 months it is getting larger. Great to hear that youre doing cross country running. You have a good understanding of the issues. My son is a baseball player, so that is good. Search Hospitals, Join 375,000+ Patientsat Our Facebook Page Click here, HeartValveSurgery.com 2785 Pacific Coast Hwy, #517 Torrance, CA 90505 Phone: (888) 725-4311, 2023 HeartValveSurgery.com. running? Im 39 also diagnosed with BAV when I was 31. Kimberly has experienced heart valve disease firsthand. This makes the aortic valve a tricuspid valve. I was wondering if you could give your opinion on my scenario. My son is devastated, depressed, and wanted to play ball in college. Will I need meds? my son has BAV he was born with. Arnold Schwarzenegger opted against a mechanical valve replacement and chose a tissue valve because he felt a mechanical valve might limit his physical activity and capacity to exercise. I have question about your opinion about aortic valve regurgitation (no BAV) Now I wanted to start again (also due to the 8kg I accumulated in the meanwhile:( ) and I discovered that I can barely run 5K in 30 min and I generally find it very difficult to run. My biggest concern is whether I will be able to return to my previous level of physical activity and level of fitness. Your responses mean a lot to myself and no doubt others on this forum. I recently also did a 24hr EKG (holter) which was fine. However, many people will develop complications from their BAV and may need surgery in their lifetimeeither to repair or replace the aortic valve, the thoracic aorta or both. Nwankwo Kanu (@papilokanu), the Olympic Gold Medalist (Soccer) suffered from Aortic Valve Defect. Hey would like to continue to be active but is worried about which procedure would be best for him. Susp. Barb. They all cause a small bit of obstruction to blood flow as it leaves the heart. I had AVR exactly 1 year ago to the date. What signs should I look out for? No operation to replace/repair the aortic valve and yo replace the ascending aorta is minimally invasive. Thats just a marketing gimmick. I have only played a few games of football in the last 5 years due to a knee injury but I have continued running for fun and do 5k in a reasonable 25 minutes. Also, again, no stenosis or regurgitation, 35 mm ascending aorta. He posed next to statues of Thomas Jefferson, Jesse Owens (whose family moved to Cleveland when he was nine, and who later attended The Ohio State University), and Abraham Lincoln. No aortic root dialation. I am now in no mans land of not needing immediate surgery (per the pressure number in left ventricle) and not being able to run more than 30 min. Editorial Review: Andrea Cohen, Editorial Director, Baldwin Publishing, Inc. Heart failure, where the heart weakens from working too hard to pump blood. March 15, 2023. Historically, a heart murmur was the most common reason affected individuals were identified. O'Donell took the aspirin recommended for people who think they are suffering a heart attack just in case, but didnt call 911. She partnered with the American Heart Association to encourage others to get CPR training that could potentially be life-saving. I wouldnt be happy just running I want to be the best that I can be at it. Bicuspid Aortic Valve: Symptoms, Diagnosis & Treatment, Biological Tissue Valves: Pig, Cow, Horse & Human, The Patient's Guide To Heart Valve Surgery. Aorta diameter (34 mm|34 mm); Hey is almost looking forward to getting it fixed. Consensus guidelines suggest restricting activities in athletes with BAV and aortic diameter >4.0 cm. We use surveillance (you mention every 6 months) because usually problems with progressive enlargement of the aorta or with the valve itself can be picked up before there is any lasting harm. Sometimes patients with mechanical aortic valves report that they lose a bit of their top-end athletic performance. I have found in my case( an athlete with bav)the typical response from doctors is, thats life, you cant do it anymore, be grateful for what you have. If untreated, it can lead to blocked blood flow. is my lack of top end performance indicative of someone with BAV & aortic coarctation? Aortic valve stenosis: Your aortic valve narrows, reducing blood flow through it. As I mentioned in previous comment my recovery is going great. No thrombus, vegetation were noted As I restart my resistance (weight training) program what should be my upper limit weights? Consensus guidelines are developed to be broadly applicable, but the guidelines may not be applicable in a given athlete patients circumstance. Ad Choices, Blood molecules as they exit the left ventricle: I'll be back., The 42 Best Romantic Comedies of All Time, The 25 Best Shows on Netflix to Watch Right Now. In addition to this public search, we scanned our proprietary research database of over 1 million sources and were unable to find any specific research reports that address your goals. Congenital heart issues affect approximately 40,000 people born each year in the U.S. and are one of the most common types of birth defects. All Rights Reserved. Bicuspid aortic valve (BAV) and congenital aortic stenosis are two types of heart defects that may be present at birth. We live at 6,500 ft (elevation) so Im not sure if its affecting my blood pressure when doing normal things. Thank you so much for your explanations, Im 30 years old with BAV 2 instead of 3 leaflets since birth, doctors recommended me to have Echocardiography test each year and so. Or, is it something that can wait until they get sports physicals in their teens? Ordinarily, we reserve operation for patients with severe aortic regurgitation who have some decrement in the LV function. I eat relatively well, but sometimes having those pizzas and burgers late at night I had to change that.. What does heavy weights mean? The plasma volume and the heart rate increase, while the systemic vascular resistance decreases throughout the first trimester and plateau about halfway through pregnancy [10]. Perhaps a cardiac surgeon would be able to provide even more detailed information about things like various options for operation that might be applicable in your case as well as thoughts about when operation should be performed. There, Lucci learned that she had a 90 percent blockage in the main artery of her heart and a 70 percent blockage in another, and needed emergency surgery. They may also disrupt the normal flow of blood through the heart. What a great resource! Could you express your opinion on this issue? I used to do quite some running 10 years ago (still at amateur level), I was doing lots of 10k and 20k and even I managed a marathon in 3h:26min (but at that time I didnt know about the BAV). Jeffrey Howell didn't know he was born with a bicuspid aortic valve until December 2015. Robbie Benson - Actor/Director - Bicuspid Aortic Valve. Unfortunatly that`s pretty much all the advice i`ve been given so far, so little out there on what i can actively do and what i can`t. It prevents the blood from flowing back from the aorta into the heart when the pumping chamber relaxes. Max Page - Child Actor (Darth Vader in VW Superbowl ad) - Tetralogy of Fallot. I seen my cardiologist yesterday and this is the first year in 4 years that the aneurysm hasnt grown a mm. You already have a cardiologist looking after you. There are certainly individuals with BAV who never have trouble down the line. It is very informative. I would prefer not to stop. Its really not strenuous, maybe 10 km/h and not more that 10 push ups at once. and my valve is working quite well (mild aortic regurgitation). Looking through the reader comments here at the blog and reflecting on the athlete inquiries Ive received, I thought Id cover some of the major issues. This procedure has the particular benefit that no artificial valve (with the disadvantages described above) needs to be used. As Schwarzenegger previously had two cardiac procedures, it is possible that Arnold may have received aTAVR using a Valve-in-Valve approach to replace his failing aortic tissue valve that was implanted in 1997. Use or viewing of any Baldwin Publishing, Inc. article signifies your understanding and agreement to the disclaimer and acceptance of these terms of use. For those same patients, we recommending avoiding strenuous dynamic exercise line swimming, running, soccer, tennis, cross-country skiing, etc. Problem is, Im getting older (52) now and Im wondering the effect age, and should I be asking for more frequent followups. Did the heart have to work harder to compensate? To list down the names of celebrities including entertainers, musicians, politicians, TV personalities, sports figures, etc. Bicuspid Aortic Valve - Medscape Rather than just sit there and do nothing about how much I missed [my mother], I put all of that pain, sorrow and longing for my mother into helping educate and make people aware. Left ventricle (LV diastolic diameter 54mm|58mm, LV diastolic volume 142ml|167ml, LV systolic volume 39ml|57ml, Ejection fraction 72%|65%); Very helpful. Is it like keyhole surgery? My problem is with cardiologists stating do not lift anything over 50lbs. Today at my hospital, we do most 1st time aortic valve replacements for aortic stenosis (narrowing) this way and have started using TAVR for patients with previous AVR using tissue valves who need re-replacement. Who Qualifies for TAVR | Eligibility and Treatment Guidelines A total of 25,556 newborns (51% male; mean age, 12 days) underwent echocardiography. She said not until it gets to 5cm. Im a 30 yr old male, training 5 times a week rowing and strength training. Either way I often think my cardiologist looks at me as if Im nuts and that my current 175 miles a week training should be thought of as beyond expectations post open heart surgery. I dont believe this has been well studied. Answers to your questions. lifting a max bench of 150 lbs During the Ross Procedure, the aortic valve is removed. Sounds like youre on the right track by getting things evaluated. I cant distinguish if its muscle pain or somewhere inside chest, its not sharp or dull, somewhere in between. I dont know why this formed as I have had the problem valve replaced many years ago. Only two cusps, commissures and sinuses are seen in the less common "pure" bicuspid aortic valve subtype. Or its the result of the cumulative effect of the aortic and mitral valve leakage? Bicuspid Aortic Valve | Johns Hopkins Medicine But neither of these procedures are durable for the long-term. Get your act together, Columbus! In practice, the indications for aortic valve replacement for severe aortic stenosis or severe aortic regurgitation are straightforward and uncontroversial. coarctation of aorta. Another possibility that you havent mentioned deserves some discussion with your sons doctor(s) or surgeon. At 4.0 cm, its important to be thoughtful about activities. Now, five months after surgery Im gradually returning to sport with 5km runs and kettlebell routine, push ups and pull ups (still feeling pressure in breast bone) no heavy lifting. At this time, it is not known whether Arnold received the new valve using a surgical aortic . This is an unfortunate situation for the athlete patient because the consensus guidelines do not yet recommend operation, yet advise against strenuous sports activities. Thank you to every doc and nurse on my team!". So it's got the Rock and Roll Hall of fame and great doctors. This visit we were told it could be a few years before anything needs to be done. She says now it is stable and I dont have to see her for 2 years. (I'm a 17 year old female)After a heart echocardiogram yesterday we found out I have a bicuspid aortic valve, I originally went in to the cardiologist for extreme fatigue, constant racing heart (avg around 130bpm resting), palpitations, spells where I almost faint, feet swelling and turning purple, etc . 1,3,4,15 It can lead to chronic heart failure and increase the risk of acute aor-tic syndromes and sudden cardiac death.15 Michelena et al16 studied 212 cases of asymp tomatic bicuspid . I have almost everyday all day shortness of breath which follows with chest pain and discomfort. However, my surgeon told me that he could fit a tissue valve and so would not need to be on warfarin. New guidelines from the American College of Cardiology (ACC) were published just this week. Many heart conditions can be controlled or repaired once theyre diagnosed. Holding breath during lifts valsalva). Website designed by Gatorworks. Parenthetically, it may be time for an update. Not sure I have something specific to suggest for additional reading.and I dont know where to steer you about a knowledgeable trainer in the UK. Im not surprised that youve received a conservative recommendation about exercise.

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